Miles's First Lost Tooth

Big kid lost his first tooth! He even broke precedent by not accidentally swallowing it. All of a sudden at breakfast he announced he pulled it out. 

 

Pre K

Miles's first day of his last year of Preschool at All Saints! His last year before Kindergarten. I'm feeling relieved he didn't end up doing RSK or even Kindergarten, then I would have been alot more emotional. He said after school that it was "just like the old days." Which I think he means it's just like last year. He's a preschool pro!

 

 

Strep!

I reluctantly took Finn in to the lab for a Strep test thinking for sure he just had Roseola. I about fell off my chair when the rapid came back positive. Good thing I took him in. Bringing the rest of the kiddos in to get tested after school and have the doctor take a look at Finn since now does that mean he has Scarlet Fever??? So glad Campbell is on preventative antibiotics. But seriously. Strep?!?!?! Come on!!!

When he tested positive, I took us all in and Miles and me tested positive as well, with negative cultures and no sign of illness. AND Finn's 1st culture never grew anything! So he didn't have Strep? Got the news 7 days after he had been on Amox and he got a horrible rash all over his body. Take him to doctor. Stop Amox (which he shouldn't even have had in the first place). Benedryl dose, seems to make it even worse the next day. And this is the beginning of an epic saga.

Update as of 12.9.18. Vomited night of 10.11, the night before Gabe and I left for our trip to AZ. Felt horrible leaving puking baby with Nana & Papa but had no refundable trip. Vomited again 10.13 10.16, 10.18 & 10.21. Would vomit for a couple hours then wake up in the morning hungry and acting fine. On the 21st took him to the ER since had been going on so long and Ped didn't know what to do. Ran bloodwork and IgE high, so referred to Allergist. Allergist on 10.22, found out IgE allergic to banana & egg and mildly sensitive to basically all food he had eatten the past 2 days. Vomited again 10.25, 10.29 + 11.6. 10.26 Ped sent us to the ER as his WBC was very high (from bloodwork done on 10.22). ER reran bloodwork, WBC better. 10.28, ER called and blood culture grew so we had to go back into ER for IV antibiotics. (Days later we found out that never grew anything further, probably a contaminated sample, so more antibiotics that were unnecessary. 11.2 Ped sent us to ER AGAIN as WBC high (FROM BLOOD TAKEN ON MONDAY AGAIN!). Did xray, ultrasound, and blood all normal. Sent us home with a diagnosis of constipated. Not sure how we went from the Ped said we would probably be admitted to do advanced imaging, do being sent home with no answers and a consstipation diagnosis. During this time did 3 stool samples and a urine test. Met with GI twice, got no answers. He didn't want to do Endo and Colonoscopy or Breath Test as they are too invasive since he is stable now. Also need to sit for 3 hours and cooperate Fructose Intolerance Challenge. During this time I met with Dietician twice, Stephanie Belseth twice, the Ped times. Started him on restricted diet 10.27. After that his vomiting was after rice, corn + pork which he tested sensitive too. As I'm writing this on 12.9, he's been to the Ped 13 times since right after his febrile seizure. Blood draws....I lost count. The most memorable were the 2 times in the ER they finally got blood on try #3. Also the time in the ER blood came out drop by drop until they got what they needed. GI tried 2 seperate occasions and couldn't get the blood. At one point one nurse said he looked so blown out all over both arms and hands that she didn't know where to try. To say he was hysterical each blood draw would be an understatment. Except for 1 good experience with a numbing can and a good nurse who had me do a cradle hold, he would scream hysterically and be completely sweaty afterward. I think as of today he's had/attempted over 12 blood draws. Plus an IV. Plus 2 xrays, 1 ultrasound. I must be forgetting something although I wish I could forget this whole mess. The only word that comes to mind is a shitshow. There have been so many ridiculous things happen. Oh, go back to ER for IV antibiotics. Oops, never needed it. Oh need antibiotcis for Strep. Oops never had Strep. I got a call just the other day for a referral to Infectious Disease from beginning of NOVEMBER. I never even knew I had a referral to there. The whole time everyone kept saying they would be very worried about him if he wasn't acting so happy. As of now, he's on restricted diet (coconut flour tortillas, sunbutter, coconut or hemp milk, green beans, kiwi, kale, sweet potato, pear and some other veggies/friuts. Lately added popcorn, beef + corn chips and he seems to be fine. Also tracking all his food, poops, and belly measurements (low being 19 to high of 22!). He often looks distended and doctors say he's very gassy.

Finn's Febrile & Rash

This is weird....the only other parent I know that has had a kid have a febrile seizure was Brianna's Blake when she was a baby. A couple months after that, my Blake had one too. Now  a couple months later. Brianna and family were over for dinner when Finn had seizure...what are the odds?

Sept 8: It was so weird, he was totally fine, no signs of illness and playing happily, then Gabe brought him inside because he was acting tired (it was around his bed time). I held him for a while and he was cuddly, but them kinda went limp and wasn't responding. I thought he had fallen asleep at first, but then his eyes were rolling back. It was kind of scary, but I was pretty sure I knew what was going on. Brianna and Harmon said just go to the ER, and they would watch the kids, so we went to the Urgency Center right up the road. They said they couldn't do anything for him other than call an ambulance. I asked if they could at least take his temp. Poor baby, it was 104.4 rectal. We then came back home and Gabe stayed with the kids. Brianna drove me to 212 Medical Center so I could sit with Finn in the back, then got picked up and they headed home. They checked him out, and said he was fine (probably virus) and sent us home a few hours later. 

Update: His temp would spike to 104.4 in the evening for the next 2 days. Then 103, 102, 101 next couple days. Then no fever and woke with rash, which looked like Roseola to me, but Nurse convinced me to go in for Strep Test. I about fell off my chair when the rapid was positive. I get everyone tested due to Campbell's PANDAS and Miles and I also were positive. No one had any sign of illness. Several days later the cultures all come back negative. So what does that mean?!?! After day 7 of Amox, Finn wakes up with a bad rash covering his whole body. Allergic to Amox says the doctor! Benedryl seemed to make it worse and the next day it was covering his body, all the dots combined together to form huge welt like things. It took a good 2 weeks to totally clear. Will this be the end of this saga?!? (I'm editing this months later, funny I wrote that, because as I know know, that was definitely not the end of that saga.)

 

Pictures don't really do it justice, it looked horrible. Poor baby. 

  

4th + Middle School

First day of school time is here again. I unexpectedly cried when Blake walked onto the school bus alone without his Big Sister. I will miss those 2 being together, weird to think that they will only be at Middle School 1 year together (6th & 8th) before Campbell moves onto High School. 

 

Man, it was a ton to figure out with Middle School. So many emails, meetings, and things to do and remember. Seems like I'm more stressed than Campbell, she just seems really excited which is so great to see. I think the thing she is the most excited about is being able to walk. Zoe + Kiera came at the last minute to walk with her which made me feel alot better than sending her off by herself. 

Campbell came home from school saying it was amazing. She said it was like a field trip and she couldn't believe that she got to go back again tomorrow. So happy for her! Blake was pretty neutral, it seemed to go ok and he has some buddies in class that he's happy about (Connor W + Joseph).